MERGE Insights

Key Takeaways from the Rare Disease Innovation & Partnering Summit

BY: JOEL BECKERMAN | EVP, CLIENT SERVICE

PUBLISHED: 5/25/2022

Last week, I attended the Rare Disease Partnering & Innovation Summit and walked away with a fresh perspective, inspiring meaningful and actionable solutions for our clients in this space. Focusing on the common mission and finding opportunities for collaboration can make such a difference to members of the rare community.

 

The amount of innovation occurring within this field is incredible and is being driven by technology. Clinical trial protocols are leveraging technology to not only optimize data capture, but also improve the overall patient experience. Additionally, Artificial Intelligence (AI) is using anonymized patient level data to enable predictive diagnosis and more precise targeting.

 

It was a true privilege to meet so many other stakeholders who are dedicated and committed to help people living with a rare disease. Hearing the personal stories of patient and caregiver advocates was truly energizing and reaffirmed the impact we can make.

 

The culmination of hearing these stories alongside learning about the innovation happening inside this community better equips our team of life science experts to continue our work with rare disease organizations as well as with out-of-category innovators.

 

We created a guide to provide a new perspective towards three tried and true tenets of rare disease marketing. If you have any questions about the summit or wish to connect on how we can serve your rare disease marketing, reach out to us.